My name is Tom; I am 26 years old and the survivor of an acquired brain injury. On the last post, I spent time stressing the importance of setting goals throughout an ABI recovery. Whether those are simple, short term goals or a more long term, complex goal, they both play an important role in building confidence within us (the patients), it allows you (the carer) to be able to see tangible progress and gives us both the incentive to keep going in what is an adverse situation. Finally, perhaps most importantly, stimulating the brain contributes significantly to establishing and building new pathways to avoid the old damaged ones that don’t work so well anymore, and improving cognitive functions. I believe that there were some things that perhaps I didn’t cover as well as I could have when talking about rewiring the brain, in particular, specific examples of what I did to aid the rewiring process. So I will dive into this a little deeper today.
Assess The Situation
In the last post, I’m unsure whether I made it clear, the idea of goal setting is important, however it should not be undertaken immediately upon the patients return. There is a period of time where both carer and patient should spend time assessing their position, what are your targets? What do you want? What do you need? These questions need to be asked and answers firmly established, between both parties, before any goals are set. Both patient and carer need to be on the same wavelength to ensure they are both working towards the same thing. If there is a miscommunication as to what the desired outcome is, it only has the potential to cause problems in your relationship.
The concept of taking your time for things to happen is something I worked out early. In my opinion, the sooner people directly involved in situations regarding head injuries grasp this concept the smoother things will go. Time is not necessarily the enemy either. When the patient arrives home, I believe that a period of time, allowing them to test their strength (in terms of their brain power: what they can/can’t do, where they struggle, what is still strong, what causes them distress) are all key things to learn when you are aiding an ABI recovery.
It becomes even more important to emphasise the importance of taking time in the recovery process when you deeply consider the idea of brain cells and synapses repairing themselves. I’ve tried to think of an appropriate analogy and this is the best I could come up with; think of an old battered road that has been damaged. So the local council decides to build a new road, a bypass so that the battered road doesn’t have to be used. Building that bypass will take time, effort and resources. As is the case when aiming your anger at public services, it doesn’t matter how angry you get, how much you complain or how much of inconvenience it is, it will only get done in its own time and all the complaining in the world wont make a difference. The repair process of cells multiplying and attaching to the right places and making the right connections is a long and tiresome process (believe me!), you can shout and scream at the process but it wont proceed any faster as a result. Everyone is entitled to moments of despair, anger self-loathing and self pity, I’ve certainly had those moments, but it can get better. You just have to be persistent, patient and determined.
Play to Strengths and Weaknesses
All of the above information is intended to help you tailor a recovery to the patients needs. This was the method our family used: learn my strengths and weaknesses and tailor the recovery to them. This section of today’s upload will give you a few for-instances that have significantly contributed to progress in my recovery. Once you know what causes a patient distress, you can avoid situations that directly involve that cause. An example from my experience; I suffered greatly from anxiety when it came to crowds, and loud noises. As a result my parents did all they could to avoid this environment when I was out with them.
Learning this kind of information will allow you to tailor a patient’s environment, activities and daily routine in a way that will ultimately benefit them. In particular, identifying activities where a patient is strong and tailoring the recovery around those strengths can ultimately help them rewire their brain and strengthen the aspects where they are not strong, build these new roads. An example for you; when I left to go to university, even after a year of trying, I was still having a great deal of trouble with reading. While I recognized the words that were on the page, the problem I was having was with the thinking that was required in imagining the pictures that the words created, so in essence, using my brain for two simultaneous activities. The way that I overcame this obstacle was by reading comic books. A friend of mine gave me a copy of Watchmen (by Alan Moore). Being presented with a visual representation of the characters and only having to deal with dialogue in speech bubbles allowed me to strengthen, not necessarily my reading ability in the strictest sense, but strengthened my brain in the way a body builder lifts weights in a gym. As time went on, I regained my ability to read (and also obtained a love for the medium of comic books and graphic novels).
I also would say that the success I had in further education was partly down to attending a course that suited my situation regarding my cognitive abilities. My degree course was 100% coursework based with no exams. Following the improvement I had seen in my reading after the discovery of comic books, reading and writing weren’t too much of a problem. It was committing things to memory that was (and still is) a problem. The course I did, was all essays or creative work which, again, allowed me to work my brain; build up some strength again and endurance. By the time I progressed into the second year of my course, my brain had been tested significantly and strengthened by those tests.
If there Is one thing I would take from my own experiences regarding the rewiring of the brain, it would be that the brain is a muscle, use it! I realise that this is something of a cliché but it is the best I could come up with. The more you work the brain, at the same time ensuring you do not neglect the essentials such as plenty of rest, good diet and exercise, the stronger you physically, and the brain cognitively, will get over time. It was only when I went back for the second year of university (something that had to be very thoroughly discussed and assessed to see if it was a sensible thing for me at the time) could I say that I felt as though things were improving for me, and that about two years. It does take time, but ambitions are achievable and progress can be made.
Thank you for reading. Please follow me on WordPress to keep up to date with my blog work. Also for anyone wanting to, I am on Twitter and accessible on there, my name is @ABIblogger, and I do my best to respond to those who make the effort to get in touch. Thanks again for reading, keep going and stay strong!